Documentation of the current academic status is required and the student must be designated as the Principal Controller. For qualified students, the cost of a SAF is 200 $US. The student discount does not apply to applications requiring additional SRTR programming. Please contact SRTR for details on adding investigators to a DUA, creating an addendum to a current DUA, and other situations not outlined above. A Data Use Agreement (DUA) is an agreement that is necessary and must be entered into in accordance with the data protection rule before a limited data set (defined below) is used or disclosed to an external institution or party. A limited set of data is always Protected Health Information (PHI), and that`s why covered companies like Stanford have to enter into a data usage agreement with each recipient of a limited set of Stanford data. Yes, you need both a Data Use Agreement (DUA) and a Counterparty Agreement (BAA), as the relevant entity (Stanford University Affiliated Covered Entity) provides PHI, which may contain direct or indirect identifiers. For this reason, a BAA may be required before passing the direct identifiers to the recipient outside of Stanford. STAR files (by default Transplant Analysis and Research) are limited data containing patient-level information on transplant recipients, deceased and living donors and candidates for the waiting list until 10.1.1987. In addition to the STANDARD STAR file, optn makes available to the public and OPTN members adapted STAR files and other datasets for research or analysis in good faith. STAR files are updated quarterly. Please request SRTR data in writing by sending firstname.lastname@example.org an email.
Please indicate in your request your contact details: name, name of the company / organization, postal address, telephone number and e-mail address. Once we have received the first application, we provide the necessary forms to complete the application. Any data requirements requiring a signed DUA also require a data security plan and research plan. One of the main tasks of the Scientific Registry of Transplant Recipients (SRTR) is to provide information and data to researchers, clinicians and members of the public. SRTR will do everything in its power to respond to data requests. However, generating custom data can take time and resources from other important SRTR tasks. It is always difficult to determine which questions should be satisfied, which questions should be referred elsewhere and which questions should be rejected. When making decisions regarding data requests, SRTR takes into account whether the possible reasons for rejecting a data request are full or partial: Limited records can only contain the following identifiers: All queries for STAR files require a signed data usage agreement and the requester must tell us what type of software they are going to use. These files are usually sent by mail to the public and OPTN members.